Understanding the symptom burden of PH

It’s a simple question, but one we’ve never asked before… Which symptoms do people with pulmonary hypertension feel they struggle with the most?

We’ve launched a new survey to help us understand the burden, and what impact they have on different aspects of life. The findings will help us focus our efforts to support our community in the most effective ways, and we’ll be sharing them with the UK’s specialist centres too.

If you have PH and live in the UK, please complete this survey.

We want to hear from caregivers and family members too. If your loved one has PH and lives in the UK, please complete this survey.

Please share your experiences with us in these ways before Friday 18^th April 2025.

Interested in the findings? Make sure you’re subscribed to our free e-newsletter and we’ll share the report as soon as it’s available.