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Emotional support via our Listening Line

Specialist support from someone who understands

We all need a listening ear, and our Listening Line support service gives you dedicated time with a PHA UK team member to talk through any worries or concerns you have relating to your emotional or mental wellbeing.

Talking to someone who already understands PH means you don’t have to explain your condition first.

This free, confidential supportive call service is available to all PHA UK members and their family and friends.

This is not a counselling or therapy service, but it’s a chance to offload your worries, or talk through things that are troubling you. Perhaps you want to discuss something without worrying your family? Or you feel you have no-one to talk to? Sometimes simply talking things through with someone completely impartial can take a weight off your shoulders or help you work things out in your mind.

The service is also here for you if you have experienced a bereavement due to PH, and you would like to talk about someone you have lost.

  • Adapting to a diagnosis of PH
  • How to talk to family or friends about PH
  • Coping with changes
  • Concerns about the future
  • Worries about loved ones
  • How to access supportive palliative care
  • Loss due to PH
  • We cannot offer personal medical advice (We are not part of the NHS so do not have access to medical records)
  • We cannot make medical referrals or speed up existing appointments or referrals
  • We cannot offer specialist mental health support

The Listening Line is operated by experienced PHA UK staff, who are retired from the NHS. They are skilled and patient listeners, with many years of experience of helping people affected by pulmonary hypertension.
They are not trained counsellors, so these sessions are not counselling, but those who have used the service tell us how beneficial they find it to talk to someone impartial who understands the condition.
“The support lifted me… it was helpful to chat with someone who knows about this disease” – Listening Line user

HOW IT WORKS
If you would like to use the Listening Line service, please complete the form at the bottom of this page and we will contact you to arrange a supportive call at a time to suit you.
Please note this service is not intended to replace clinical advice from your specialist centre team.

BOOK AN APPOINTMENT OR MAKE AN ENQUIRY
Please complete the form below and we will contact you to arrange a supportive call at a time to suit you.
Got any questions about the service? Email listeningline@phauk.org or call 0300 373567.

CONFIDENTIALITY: Nothing discussed during the calls will be shared without the express permission of the service user. The only exception is where we may have concerns about someone’s safety. Your contact details will be kept on file so that any member of the PHA UK team can contact you for admin purposes related to this service, for example in the event of having to reschedule a call.