In the summer of 2024, we assisted researchers from the UK’s specialist PH treatment centres to explore whether a custom-designed app might help patients access support and resources and get involved with studies. To support the exploration, we conducted an online survey amongst our patient community to understand more about app usage, what devices people with PH use, and whether some of the researcher’s ideas would be welcomed.
You can see the findings below:
Update: March 2025
VOICES FROM THE PH COMMUNITY HAVE MADE A DIFFERENCE!
The findings from this survey helped shape a successful funding application for the development of the app. With the grant now secured, work is now beginning on design and it is hoped that the app will be available from the autumn of 2026.
