Promises

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.
I will fight as hard as I can for the best outcomes for my daughter and others with PH. I will never give up on you Florence!

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I am trying to raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible. In memory of my much loved son Thomas who had PH and died after a double lung transplant aged 38. Remembering with gratitude all those in the NHS who supported him in this dreadful illness.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. Raising the profile of PH is incredibly important to me.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I always share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I try to help those around me to understand that not all disabilities are visible. Above all, I ain't gonna give up!

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

My organisation will always treat people with hidden disabilities fairly and compassionately, and will encourage understanding of those living with pulmonary hypertension.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
I do this all the time, people aren’t always interested on the 1st try so I will continue until they know enough to be interested

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will continue to be positive in dealing with this disease and encourage others

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will forever raise awareness for PH!

My Grandmother suffered with this awful illness, I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will also try to explain to those (including health professionals), what it is especially when you get that blank expression from them!

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will help my peers and other healthcare professionals understand pulmonary hypertension, to aid earlier diagnosis and encourage quicker access to specialist care.

I will continue to fight for
Our family’s genetic testing in memory of all those who have lost there lives in our family ❤️❤️

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible. I do this in support of my mother who lives (and struggles) with this disease each day.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.
I will raise money to fund more research into treatment that can help those with PH including my 7m niece, Florence. https://www.justgiving.com/team/hailes

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

We are committed to sharing cutting-edge research, raising awareness of pulmonary vascular disease and addressing key challenges in PH. We are pulmonary hypertension professionals united in our vision for a world without pulmonary vascular disease. We will continue to advocate, collaborate, and educate so that PVD is well understood and properly resourced to improve diagnosis, treatment, and care for patients worldwide.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.im actually doing a itv news special on ph in next few days x

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will strive to ensure that people around me know and understand what PH is and what living with this chronic, invisible disability is really like.

I will continue to offer advice, support and lived experience of PH and IV meds with newly diagnosed people and medical professionals. I aim to show that a good life can be lived even with PH and numerous other autoimmune illnesses.

My phight will continue to live my best life and show that I may have PH but it doesn’t have me! I promise to share my positive outlook and help other Phers whenever I can.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
I will be going to my Gp and other drs I see to emphasise PH 🙏

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
I would tell other PH warriors that together we’ve got this!

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.
In memory of our son Will, who tragically died aged 22 after having being diagnosed with IPAH

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
I will show people it is ok have bad days and that we can be strong and pick ourselves up. Always remember to talk and let others help you too

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible by my crowdfunding page as I've been cured from PH.
This is following on from my fundraiser last month.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will live my best life and be here to support fellow sufferers if they need my help. I will raise awareness for my linked health care providers such as my GP and colleagues working in health care professions.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will share my experiences with my healthcare professional colleagues to raise awareness of the need to #thinkpulmonaryhypertension when assessing patients and considering referral.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary arterial hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I will explain about RHC and living with my epoprostinal infusion. I will be in pain I will turn blue from time to time but I am still me and I will live my life to the fullest I can manage which will be difficult and different each day.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
Most of all show people you can still live life to the fullest 💕

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.
Subject to getting a clean bill of health on my classic car, I plan to set up a Charity Drive with it from John O'Groats to Lands End and promote the PHA and all they do.

I promise I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible.

I will share my experiences of pulmonary hypertension by talking to others about what it means to live with a rare disease. I will help those around me to understand that not all disabilities are visible. I have a TikTok account dedicated to the condition and have helped lots of people understand more about this condition

I will raise awareness of pulmonary hypertension, and support those with it, by helping people around me understand that not all disabilities are visible.

I promise to continue advocating for our membership and supporting all of those affected by PH; patient, family, loved ones alike.

I promise to always do my best to raise awareness of PH, advocate for people with hidden disabilities, and encourage understanding of rare diseases.