PRESS RELEASE: People living with the rare lung disease pulmonary hypertension saw their physical health deteriorate whilst shielding, according to a new report.
1 November 2020We are proud to be signatories on a letter calling for those with rare diseases like PH to be recognised as part of Government's Comprehensive Spending Review.
27 October 2020We are sharing this press release on behalf of our friends at NHS Blood and Transplant, to mark World Heart Day 2020.
29 September 2020Dr Iain Armstrong was named ‘Respiratory Nurse of the Year’ at the British Journal of Nursing (BJN) Awards.
4 September 2020A new NHS initiative is aiming to help people politely prompt ongoing distancing and respect of individual social space.
10 August 2020A message on behalf of the UK’s specialist centres PH patients have been shielded during the COVID19 pandemic. Consequently in March, the UK centres all agreed to suspend blood testing for everyone prescribed an Endothelin receptor antagonist (Ambrisentan, Bosentan or Macitentan) . The current government advice is for shielding to end on August 1st. […]
3 July 2020