Individual grants and financial assistance: PHA UK policy

We understand the significant impact that pulmonary hypertension can have on people’s lives, including the ability to work and manage finances. We deeply empathise with those who are seeking financial assistance to help alleviate the burden of this condition.

However, as a charity with limited resources, unfortunately we are unable to offer grants or financial assistance to individuals. (The only exception to this is for the provision of dry suits for children on intravenous therapy – please contact us if you would like to enquire about this).

As an organisation, we must ensure that our limited funds are allocated in a manner that is fair, sustainable, and aligned with our mission to support the entire pulmonary hypertension community.

Therefore, our primary focus is on supporting our community through developing new information resources and support initiatives, which we ensure are always available without charge – including our many printed publications and materials. You can find all of our resources, and order what you need completely free, here.

While we cannot provide direct financial assistance ourselves, we are committed to helping our community access the support they may need in other ways, and you may find some of the following resources on our website helpful:

• Our free benefits calculator and grant search tool helps you discover what may be available to you based on your personal circumstances.

• You will find a list of the benefits you may be entitled to here.

• Help to complete your benefits application can be found here.

• This free publication helps you prepare for a benefits assessment.

• Advice on appealing a benefits decision can be found here.

• Advice around employment and real experiences of stopping work due to PH can be found here.

Further support and advice

The following organisations may be able to provide further support and advice around grants, financial assistance, and monetary support if you are affected by pulmonary hypertension:

Turn2us provides information and support about welfare benefits and charitable grants. You can also access their tools via the PHA UK website here.

Citizens Advice Bureau can help with a wide range of issues including financial and employment difficulties. 

ACAS gives free, impartial advice on workplace rights, rules and best practice. They can advise on your rights at work or disputes with employers.

Scope provide practical information and support around finances and employment, especially for disabled people.

If you have any questions about our grants and financial assistance policy, please email hello@phauk.org and we will be happy to assist.