A PHA UK collaboration has enabled the launch of a new book to help children with pulmonary hypertension (PH) understand more about their condition.
Exploring PH with KiKi the Koala has been written and designed by 22-year-old Londoner Maryam Hussain, who was inspired by her little sister’s experiences with the rare disease.
The PHA UK has covered the print and production costs to allow as many families as possible to benefit from this unique publication.
By following KiKi’s journey, the book aims to help children aged three to nine learn more about PH and realise how special they are – just like KiKi.
Order your free copy here
Find out more about the inspiration behind the book here
Pictured above: Maryam (right) with her sister Fatima
A PHA UK collaboration has enabled the launch of a new book to help children with pulmonary hypertension (PH) understand more about their condition.
18 January 2024The PAH therapy sotatercept is the first drug to target the root cause of the disease, and trials have produced promising results. But as 2023 draws to a close, are we any closer to it being made available for patients?
4 December 2023Our response to Government plans to 'get more people on disability benefits back to work'.
29 November 2023New research by the PHA UK shows that people are still waiting too long for a diagnosis of pulmonary hypertension (PH).
3 November 2023Please read this if you are prescribed this diuretic as part of your pulmonary hypertension care.
19 October 2023A new PHA UK publication aims to support women with pulmonary hypertension experiencing perimenopause and menopause.
18 October 2023