Posted on August 6th 2024
Originally posted 6th August 2024. Updated 9th October 2024.
For the last few months, we’ve been working in collaboration with the specialist centres, homecare delivery companies, and drug manufacturers GSK to bring you regular updates on supply issues related to Flolan – which is also called epoprostenol.
Following an update, we can report that regular shipments are now coming into the country and all homecare delivery companies have now reverted to the normal schedule of providing four-week deliveries to patients (as of Monday 7th October). It is expected that full, safe stock levels at suppliers’ warehouses and homecare companies are expected by the end of November.
The PHA UK, along with PH teams from every affected centre, have met regularly with homecare delivery companies and GSK since the ‘pause in supply’ in March to lessen any potential impact for patients. We continue to hold GSK to account for the delays and for the anxiety that these issues have caused within our PH community.
Despite multiple requests, GSK have not provided any details as to what caused the temporary halt to production, nor have they provided an apology. However, we have been assured throughout that it did not caused any potential risk to the quality and safety of Flolan in use at present or in the future. Therefore, we are reassured it is safe for you to continue taking this drug.
